Consortium Sites
Neurofibromatosis Program
300 Longwood Avenue
Boston, MA 02115
Principal Investigator: Nichole Ullrich, MD, PhD
Study Coordinator: Kiera McKendrick, RN
Phone: (617) 632-4595
Locked Bag 4001, Westmead, 2145
Sydney, NSW, Australia
Principal Investigator: Kathryn North, MD, FRACP
Study Coordinator: Jonathan Payne
Phone: (61)2-9845-3698
This site is only recruiting for the STARS study
Department of Neurology
111 Michigan Avenue, NW
Washington, DC 20010
Principal Investigator: Roger Packer, MD
Study Coordinator: Rochelle Kane-Jackson, RN
Phone: (202)476-2021
3333 Burnet Avenue - ML 4006
Cincinnati, OH 45229-3039
Principal Investigator: Elizabeth Schorry, MD
Study Coordinator: Kristina Kruskamp, CCRP
Phone: (513) 636-5336
Pediatric Oncology Branch
10 Center Drive
Building 10 CRC, room 1-5750
Bethesda, MD 20192-1101
Principal Investigator: Brigitte Widemann, MD
Study Coordinator: Michelle O'Brien, RN
Phone: (301) 480-8871
Department of Genetics
Kaul Human Genetics Building
1530 3rd Ave S
Birmingham, AL 35294
Principal Investigator: Bruce R. Korf, MD, PhD
Study Coordinator: Christina Barger, MS
Phone: (205) 934-9575
Pediatric Neurology MC 3055
5841 S. Maryland Avenue
Chicago, IL 60637
Principal Investigator: James Tonsgard, MD
Study Coordinator: Cynthia MacKenzie, RN
Phone: (773) 702-6487
Children's Hospital of Philadelphia
3400 Civic Center Boulevard
Philadelphia, PA 19096
Principal Investigator: Michael Fisher, MD
Study Coordinator: Carmen Belasco, RN
Phone: (267) 426-9359
Division of Medical Genetics
Department of Pediatrics
2C412 SOM
50 North Medical Drive
Salt Lake City, Utah 84132
Principal Investigator: David Viskochil, MD
Study Coordinator: Heather Hanson, BS, CCRC
Phone: (801) 587-9017
Department of Neurology
Box 8111
660 South Euclid Avenue
St.Louis, MO 63110
Principal Investigator: David H. Gutmann, MD, PhD
Study Coordinator: Lisa Murray
Phone: (314) 362-7379